Fun day at pub to raise funds for children suffering rare form of epilepsy

The event has been inspired by a four-year-old who has the condition and the fundraiser will take place at the Oakley Arms on Saturday, July 23, from 11am.

Organising the event is Paris Cataldo whose daughter Amelia has Dravet Syndrome.

Paris said: “We are aiming to raise £3,000 by next year to give to the Dravet Syndrome UK charity as they have helped our family,

“We want to give back and help others but also we want people to understand what Dravet is and raise awareness.”

The fun day at the pub will feature music and a disco, bouncy castle, reptiles, a pig roast, barbecue and much more.

Paris added: “My daughter Amelia had fits from the time she was 8 months old and it was only this time last year we found out what type of epilepsy she has.

“The charity has helped us a lot, giving us a monitor that she sleeps with at night, which bleeps and wakes us up if she has a fit.”

He added that funds raised would help pay for equipment for others suffering the condition. For more information about Dravet Syndrome, visit www.dravet.org.uk