Dream trip for teenager living with rare condition

Emily Hannan and mum Trish on a dream trip to Florida PNL-151214-122950001
Emily Hannan and mum Trish on a dream trip to Florida PNL-151214-122950001

A girl with a rare genetic condition had the time of her life on a dream holiday to Florida thanks to a national charity.

Emily Hannan, from Lidlington, went to Disney World with her mother, Trisha, and big sister Jess, on the trip organised by Caudwell Children.

The 16-year-old, who has Cardio-Facio-Cutaneous (CFC), visited Animal Kingdom, Magic Kingdom, Hollywood Studios, Universal Studios and Seaworld.

Her condition is so rare, it is believed only between 200 and 300 people diagnosed with it worldwide.

Caudwell Children is a national charity which provides practical and emotional support to disabled children and their families,

It created its annual ‘Destination Dreams’ holiday in 2007 to give 25 children with life limiting conditions the opportunity to experience a fully supported dream holiday.

Chief Executive Trudi Beswick said: “For many families caring for children with terminal or life-threatening conditions, the thought of leaving the protected environment of their home town, and their regular medical support, fills them with dread.

“By providing 24-hour professional medical provision and a team of volunteers for the duration of the trip, Destination Dreams gives families the chance to create happy holiday memories, often for the first time!

“I would ask the local community to support us so that we can take more children, like Emily, on the trip next year.”

For more information on Destination Dreams visit: www.caudwellchldren.com

Visit www.cfcsyndrome.org for more information about CFC.